Management · Lantern

Between appointments, life happens — symptoms come and go, questions occur to you, good stretches and hard days pass. Lantern helps you keep track of it all, quietly and in your own words, so that when you next see a clinician you have a clear record to talk through.

Lantern is a companion to your care. It doesn't diagnose, advise, or make decisions. It helps you notice, organise, and share.

What day-to-day management covers

Everyday tracking — capturing symptoms, changes, and questions as they happen, before they're forgotten.
Sharing a clinician-legible record — turning what you've captured into a clear summary to hand over, on your terms.
Consent & privacy — deciding what's captured, what's kept, and what's shared.
Carer support — involving a family member or carer, with a clear record of who noted what.

The idea in one line

Capture what you notice, in your own words. Keep it organised. Share a clear record with the people who help you. Let the clinician interpret.

Everyday tracking

The most useful record is the one you build a little at a time, as things happen. Lantern makes that easy and low-effort.

Capture the moment

When you notice something — a symptom, a change since last week, a good day, a question you want to ask at your next appointment — jot it down. A few words is plenty. You can note when it happened and how it felt. Your words are kept exactly as you wrote them.

Add structure when it helps

If you'd like to record something more specific, you can:

Log an event in the event diary — a described episode, an attack, a relapse, or a symptom — kept as your own account.
Answer a questionnaire — an original question set about how you're doing.
Record a measurement — take an optional check-in task if you want a concrete number to share.

None of this is required. Track as much or as little as suits you.

What tracking is like

In date order, in one place. Everything you capture is organised chronologically so patterns in your own record are easy to see when you and your clinician look together.
No judgement. Lantern never scores your entries, never flags them, and never tells you what they mean. It holds your record; it doesn't grade it.
Yours to edit and remove. You're in control of what's kept.

A gentle note

Tracking is meant to help, not to become a burden. Record when it's useful to you and leave it when it isn't. And if something worries you, don't wait for your next appointment — contact a clinician.

The point of tracking is the conversation it makes possible. Lantern turns what you've captured into a clear record a clinician can take in quickly.

One organised summary

Lantern gathers your notes, logged events, questionnaire answers, and any measurements into a single, legible summary — in plain language, in date order. It's designed to be readable at a glance, so a short appointment goes further.

You decide what's included. Pick what goes into the summary and leave out what you'd rather not share.
You decide when. Nothing is shared until you choose to share it. Lantern doesn't send your record anywhere on its own.
Your words stay your words. What you wrote is carried over verbatim, not rewritten or reinterpreted.

Honest labelling on everything shared

Any record you share carries clear, built-in labelling:

Measurements from check-in tasks are shown as neutral measurements with their units — never as scores, results, or interpretations.
The check-in tasks are marked experimental and not a cleared or approved medical device.
Nothing in the record claims to be a diagnosis or a clinical conclusion.

This labelling is part of the record by design, so a clinician always knows exactly what they're looking at.

What the clinician does with it

They read it and interpret it. The record is there to inform their judgement, not to replace it. That's the whole idea: you arrive prepared, and the clinician does the interpreting.

Carer support

Many people manage a neurological condition with the help of a partner, family member, or carer. Lantern is built to include them, without letting the person's own voice get lost.

A shared record, clearly attributed

A carer can help capture. Notes, logged events, and questionnaire answers can be entered with a carer's help, or by a carer on the person's behalf.
Who noted what is always clear. Every entry carries a record of its source — whether the person entered it themselves or a carer did, and when. This keeps the record honest and lets a clinician weigh it properly.
The person's own words stay central. Carer input supports the record; it doesn't overwrite the person's own account.

Support with the check-in tasks

Some tasks can be tiring or difficult on a given day. Lantern's tasks are designed to be gentle and skippable, with clear stop and rest prompts. A carer can be present to help — and where a carer assists with a task, that's recorded too, so the measurement's context is clear.

Carer involvement doesn't change who's in control. Consent to capture and to share remains with the person whose record it is (or their appropriate representative). See Consent & privacy.

A note for carers

Lantern helps you help — keeping track of what you've both noticed and bringing it together for an appointment. It does not diagnose, advise, or tell you what anything means. If you're worried about the person you care for, contact a clinician.

Your record is personal, and it stays under your control. Here's how consent and privacy work day to day.

Nothing is recorded until you agree to it. Each check-in task asks before it uses a sensor — the touchscreen, motion sensors, or the microphone for voice tasks — and you can decline any of them and still use the rest of Lantern. Declining is always a real, first-class choice.

Your data stays with you

On your device by default. Wherever possible, your notes and measurements are kept and processed on your device.
Audio handled on-device. For voice tasks, audio is processed on your device, and you choose whether to keep a recording or only the measurement.
Yours to delete. You can remove anything you've captured.

Your record is only shared when you choose to share it, and only the parts you select. Lantern does not send your information anywhere on its own. See Sharing a clinician-legible record.

What Lantern won't do with your data

It won't attach an interpretation, score, or meaning to it.
It won't compare you to a "normal" population.
It won't detect, predict, forecast, or alert on anything.

An honest note on documentation

Some parts of Lantern are early-stage and experimental, and formal data-protection documentation and regulatory status are open and not claimed as complete. We flag this rather than imply a sign-off we don't have.