Guillain-Barré syndrome and CIDP
A steady companion to help you record weakness, numbness, and recovery over time — in your own words, ready to share with your neurology team.
What it is, in plain words
In these conditions, the body's own defence system mistakenly attacks the nerves that carry signals to the muscles and skin. Guillain-Barré syndrome (GBS) usually comes on quickly over days or a couple of weeks, often after an infection, and then slowly improves. CIDP (chronic inflammatory demyelinating polyradiculoneuropathy) is a longer-lasting relative that can come and go or build up gradually.
Both can cause weakness, numbness, tingling, and tiredness, often starting in the feet and hands. Recovery can be slow and uneven, which is wearing. Being heard through that journey matters.
The kinds of experiences people track
A simple record can help you and your team follow your progress. People often note:
- Weakness — what is harder to do, like stairs, standing, or gripping.
- Numbness, tingling, or pins and needles, and where they are.
- Balance, walking distance, and tiredness through the day.
- Pain, and anything that eases it.
- Small wins in recovery, and days that feel like a step back.
- Mood and worry along the way.
How Lantern helps
Lantern is a calm place to capture these changes in your own words, day by day, so slow shifts are not lost between appointments. Your notes build into a clearer picture of how you are moving and recovering.
Your neurology or rehab team may use their own measures — for example disability scales such as the GBS disability scale (Hughes), the INCAT score, the ONLS, or the R-ODS. Lantern lets you note the names of the tools your team uses so you can talk about the same things. Lantern does not carry them out, fill them in, or score your strength — that is your clinician's job. Lantern simply helps you share a clearer, honest account.
A gentle note
Lantern is a companion, not a doctor. It does not diagnose GBS or CIDP, test your nerves, or tell you what your symptoms mean. GBS can worsen quickly — if weakness is spreading fast, or you have trouble breathing, swallowing, or moving, seek urgent medical help or call 999. For slower changes, contact your neurology team or GP.
Bring your Guillain-Barré syndrome and CIDP experience to your next appointment
Capture symptoms, notes and recognised questionnaires in Lantern, then export a clear summary to share.